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Thursday, March 1, 2012

ms update


Breaking silence to let you know I finally saw my neurologist at 3pm today…drove through the storm.

... she walked in and said “you look terrible” started exam and two minutes in said “I want to get you in for a steroid infusion here at the hospital out patient center now…we’ll schedule an mri, I need to see if there is anything new, but first let’s try to get this calmed down.”

So…tomorrow a visiting nurse will give me the next dose at home…not sure how many days, but I found a great vein for the nurse today and hope the catheter will hold out for at least two more days…might need a new one if we go for five.

I am disappointed, and yet it has been six months since my last exacerbation, three of them in remission…the longest remission in the past four years!  That said I am  grateful for three excellent months of increased mobility and energy. I am hopeful that I may return to the quality of life I was enjoying up until a few days ago again.

Thanks everyone for the emails and loving blog comments.

Xo
L

The photo above is from the last storm... haven't uploaded images from today yet. A deeper snow this time, more than a foot in the back yard when Gord took the dog out when we got home at 7pm.

27 comments:

  1. Thinking of you and sending much, much love!!! Hugs! Silke

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  2. Sending healing thoughts your way ~

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  3. Oh I am sorry and I understand how you feel. It is devastating to be doing better and then relapse, but I try to remember that I can and will do better again..it helps a little. I will keep you in my thoughts...watch your sugar levels with the steriods, mine weren't watched in the beginning...Michelle

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  4. All my love to you Laura. You are so courageous. Your spirit is so strong that it always lifts me up.

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  5. I haven't been visiting as I used to, but I think of your often. I'm so sad to hear that your health has taken a down turn. I haven't forgotten you in my prayers, though. Bless you, Laura, the Lord keep you safe and in his hands.

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  6. I'm glad you're getting good care, Laura, to help calm down the flare-up. I imagine that in the midst of your grateful heart, you have a very human desire nonetheless for these flare-ups to get under control and not recur. That is my prayer for you. For calming of this current state and for a good, long time of calm following this. Gentle hugs; know that you're in my thoughts and prayers even when I don't comment.

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  7. Julie in CaliforniaMarch 1, 2012 at 10:26 PM

    Always thinking of you and you are in my heart, my sister. Thank you for the sweetest gorgeous bday photo -I LOVE YOU
    Julie

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  8. Laura, it looks as though you live in a winter paradise. We have had no snow this winter, and therefore it has been a dark winter here in Southern Ontario. I send you healing energy, and hope that this is a brief relapse and that your vein stays juicy and strong. Lois

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  9. Keeping you in my thoughts and prayers, dear one. I'm glad you are getting the care and attention you need, so that you can get this latest obstacle under control. Sending you huge hugs, lots of love and healing thoughts.
    xoxoxo

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  10. hoping the treatments help, dear laura...

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  11. Praying that things get better soon!

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  12. love and prayers received and will no doubt be infused directly into my veins with my meds over the next couple of days...right to my heart.

    thnx everyone
    xo
    L

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    Replies
    1. sorry I can't respond individually to each message...just so tired...plus the blog silence vow (so much for vows)

      more photos to come ... as the month moves forward:-)

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  13. glad you made it to the doctor before you were snowed in... so sorry for the setback, but hoping, along with you, that it won't be prolonged.

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  14. Thanks for the update Laura. My hopes are with your hopes.

    The snow looks beautiful, but I'm glad I'm not in it.

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  15. sending you my prayers. blog silence? Bah! :) Stay strong.

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  16. Stay well, and I'll send my prayers. - Moskowitz

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  17. sending prayers and a big hug.

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  18. Hoping and praying that things will get better soon.
    Big hugs

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  19. you have such a wonderful attitude and hope in the face of what you have to go through and endure.. showing tremendous strength.. very inspiring.

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  20. Heaps of love and blessings :-)

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  21. <3 sending love right to your heart...

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  22. Be strong- stay positive. I too have MS. Recently, I published a book about my journey with MS through poetry and essay.. If you'd like to check it out: http://www.lulu.com/product/paperback/stumbled-standing/18847124?productTrackingContext=author_spotlight_142339417_

    Thats one long address. lol oh another important word- laughter. :)

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  23. Big hugs to you, Laura. Wishing you a speedy return to feeling better.

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